UTOPIAN

RESPONSE TO THE INFORMATION AND PRIVACY COMMISSIONER’S REPORT ON UTOPIAN

May 28, 2024

Recently, a decision was released by the Information and Privacy Commissioner of Ontario (IPC), with the findings related to an anonymous complaint received by the IPC in July 2022.

We welcome the decision and thank the IPC for their thorough review of this matter. The University of Toronto has participated fully in IPC’s investigation.

While UTOPIAN is not active, we are studying the recommendations set out in the decision and will make any necessary changes to future projects in order to ensure compliance with all applicable requirements.

As the IPC report indicates, at no time in the UTOPIAN project was there a sale of data to third parties. Furthermore, the IPC report indicates that no unauthorised disclosures of personal health information to third parties were identified.

The IPC’s feedback provides an opportunity to strengthen all practice-based learning and research networks in Canada.